Marfan syndrome is a rare genetic condition that affects the body鈥檚 connective tissue, sometimes in ways that are life-threatening, and often life-changing. Meet three people whose stories reveal the risks, resilience, and even humor of living with Marfan.
Dr. John Elefteriades, one of the world鈥檚 leading aortic surgeons, explains how new AI tools could revolutionize diagnosis. British engineer Tal Golesworthy recalls how he designed the device that saved his own heart. And comedian Liam Nelson shares how his height, surgeries, and community shaped both his life and his stand-up.
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GUESTS:
- : Cardiothoracic surgeon, researcher, and educator. He is a Professor of Surgery at Yale School of Medicine, and a founding director (Emeritus) of the Aortic Institute at Yale-New Haven
- : British engineer with Marfan syndrome, who persuaded surgeons to implant a device that he developed in his heart in 2004. It's called the ExoVasc Personalised External Aortic Root Support, or PEARS
- : Atlanta, Georgia-based comedian and advocate who has Marfan syndrome
Jessica Severin de Martinez, Khaleel Rahman, Meg Fitzgerald, and Robyn Doyon-Aitken contributed to this show.
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